MiGene Family History Application
University of Michigan
Solution Overview & Benefits
- Customizable questions
- Data collection does not require internet access
- Able to collect identifying information including pictures (if approved by local IRBs)
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Entered data only accessible via secure, password-protected Michigan Medicine servers
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In case of lost or stolen phone/tablet, data not accessible from the app
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Able to collect a 3-generation pedigree covering any condition(s) of interest
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Pedigree able to be exported following data uploading
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Following data entry the app can output genetic counseling or other recommendations tailored to entered data
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User training on all app features takes less than one hour
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Data entry takes on average 5-10 minutes per study participant
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Has been used by nurses, medical students and attending physicians in various practice settings
History & Development
The MiGene app was developed in 2016 through a partnership between University of Michigan’s departments of pediatrics and of obstetrics and gynecology, and St. Paul’s Hospital Millennium Medical College in Ethiopia.
The app was designed so that it could be used broadly to support health needs assessments by any hospital or ministry of health through its ability to store the entered epidemiologic data for future analysis.
Pediatricians, OB-GYNs, and fetal medicine specialists are using the MiGene app to trace patient histories of conditions such as Trisomy 21/Down syndrome, cleft lip and/or palate, heart malformations, and intellectual disability.
The team plans to publish the results of the MiGene study to help future work in community genetics in developing countries.
Availability
- Publicly available: No
- Countries where available: Worldwide
- Price range: Contact supplier for quote
- Offered or can be licensed for local manufacture: No
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